We're still very frustrated about Kelsey's liver and her retaining fluid with no real answer as to why and when it might stop and even if it will get better, BUT we did get some good news this morning. The ped. cardiologist called this morning and said Kelsey's PDA closed!!!! We were asking God to closed it and it did, big praise. She still has the VSD. And although she thought it was getting smaller, she doesn't think it will close also (but it could, who knows). Kelsey got off the c-pap yesterday and is back to her nasal cannula. She's getting breathing treatments still and who knows how well she will do with getting off more oxygen. She is still gaining fluid in her abdomen and there is nothing they can do to stop that. It's all up to her whether it gets better or worst.
As excited as I am about he PDA closing, I'm still very frustrated with the liver situation and lack of definite answers. We just want our little girl better so she can come home SOON. It just seems like she's been there so long and we have no end in sight. Pray for patience for Mama and Daddy. I feel like I have two different lives. One out here in the real world with Keeton, family, friends, and housework. And then another when I go to the hospital. That life is seperate from every thing else and I can only live in that world for a couple of hours a day. I'm so ready for these two lives to be one, so I can share this sweet precious gift with everyone and anyone and I can hold her and love on her anytime I want.
Keep praying for our sweet baby Kelsey!! I have some cute pics of Kelsey I will try and update them later today.
Patti
Thursday, October 22, 2009
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Patty--definitely praying about all of this. Especially about having to live two lives. I can't imagine how hard it is wanting your precious baby home with you and not knowing when that day will be. Praying for God to work in ways we've not experienced and that His work will be powerful and timely.
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Jennifer Bell Riley
Patti, I am so glad to hear about the PDA. How wonderful! Hopefully she will now gain more strength and energy. We are praying for God to heal Kelsey. Thanks for updating us. We think about her all the time...
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