Well, we had an interested turn of events today. Kelsey got all the way down to the OR table and the doctor was making sure everything was in order and found out she hadn't had been tested for Hep-C. So, he said he won't do the surgery until that was done. So, the surgery was postponed until ????? We are relieved and frustrated at the same time. Some of you already know, but Andy contracted Hep-C in the 80's from a blood transfusion for his hemophilia. (That's a whole other story.) Anyway, I was tested when Kelsey was born and was neg, so that should make Kelsey neg also. But just in case the surgeon wouldn't do the biopsy until Kelsey was tested, also. Because Kelsey was transferred from another hospital it was assumed she had already been tested but she wasn't. So, no surgery for Kelsey today. It will take a couple of days to get the Hep-C results back before they can reschedule the surgery. We don't know why this happened this way but can only know God is in control and He knows.
Her platelets were down to 80 so they did give her more platelets before the surgery. They didn't drain any fluid before the surgery but because it was postponed, when she got back to the room they did drain 180 cc (6 oz) off this afternoon. We are back to waiting. We will continue to pray for healing for her liver and this fluid situation.
Not sure what else to say at the moment but a big thank you for all your prayers this morning!!!!! One day I hope to know why this happened but for now just have to trust it's all part of God's plan.
Patti
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I'm sure that was frustrating, yet a bit relieving, today. Keep us posted. We're still praying!
ReplyDeleteI was forwarded a prayer request for your precious daughter Kelsey and have been reading the blog to keep updated. I just wanted to let you know I have a son, Jeremy who is now 10 years old who was born with special needs, diagnosed w/ FG syndrome. I was reading your statement about how people tell you that you are strong, I use to hear that all the time and felt the same way you do. I just wanted to get Jeremy's home, no matter what just let me take my baby home. Jeremy had major open heart surgery shortly after he was a year old, he has hydrocephalus and shunts placed, revised and infected. We are currently dealing with him going to have surgery to repair his severe scoliosis. I have done the same thing, cry late at night in bed, going down the road. Hang in there.
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