Sept 20, 2009

Kelsey's not getting better, Wednesday and Thursday she started getting worst and Friday was very scary for us. We meet the with the NICU team of nurses and doctors to discuss our options and at first, they wanted her to have open heart surgery ASAP. But the pediatric cardiologist, thought she was too little and it would to dangerous (meaning she wouldn't make it out of surgery). She spend the whole morning talking to us, the heart surgeons, and the NICU doctors trying to figure out what would be the best for Kelsey. The three problems with her heart I mentioned in the last email (PDA, VSD and ASD) were getting to be too much for her little body to handle. Her lungs and body were filling up with fluid and she was having a hard time breathing. On top of that her platelets were continuing to drop and she had to get platelets twice, once on Tuesday and then again on Friday. Friday they put her back in her incubator and back on IV fluids only and thought it best not to hold her. Then told us we needed to decide if we wanted to move her to Medical City or Children's and if we wanted to do surgery to only fix the PDA (it's on the outside of the heart) now and hope she improves so we can do open heart surgery when she bigger (at least 8 lbs) or do we want to risk doing open heart surgery now and fix them all (VSD and ASD are the holes in the heart). Another risk for the open heart is that putting you on the heart and lung pump burns platelets and she has a problem with making platelets. Needless to say, Friday and Saturday was a tough time for us trying to get all the info we need to make this decision. We did a lot of praying and talking to doctors and anyone else that could help us.

So, Saturday afternoon we decide to go with Medical City and plan on doing just the PDA surgery first, sometime this week. We've prayed about this decision and asked God to give us the wisdom to make the right decision and now we have to trust in Him to give us a peace about it. This has been one of the hardest decisions we have had to make. We don't know how this week will unfold but have to trust it's in God's hands. Kelsey will probably be moved to Medical City tomorrow (Monday morning). Then the heart surgeon and cardiologist will have to decide when her surgery will be for the PDA. Also, Medical City has a pediatric hematologist that will also look at her and try to figure out what's going on with her blood (Plano Presby didn't have ped. hematologist). We're also going to have a ped. liver doctor look at her because her liver is still too large and we have never gotten a good answer as to why. She will probably still be in the incubator and on IV fluids until they can get all this done.

Tuesday will be 7 weeks since she was born and we aren't much closer to getting her home. That's very discouraging to us but at the same time we are hopeful the change in hospitals, a new set of doctors looking at her and the surgery to close the PDA will make a BIG difference. We defiantly need your prayers for Kelsey, both of us and big brother Keeton. It's been a long 7 weeks and we still have a long way to go.

Also, tomorrow I have my gallbladder function test at 11:30am. Pray we find the answers we need for me. Not the best timing for this gallbladder but God know how much we can handle and we are depending on Him more than ever for His strength, His peace and His hope to help us through all of this.

Thanks for your continued prayers and support!!!

Love,

Patti and Andy