They called this morning with some more issues with Kelsey. Kelsey is now hypo-thyroid (about 70% of children with Down syndrome have a problem with their thyroid). When your thyroid is not working it affects all your other systems. So, this is not helping her lungs, heart, liver and digestion system work very well. It also means her surgery will be postponed until it can be corrected with medicine which will take 2 to 3 weeks. Meanwhile, they are still working on her platelets, which seem not to be dropping as fast. But, they don't have any new news with the blood. Her lungs have to much carbon dioxide in them, so they have had to increase her oxygen flow to help push the CD out of her lungs. They have also had to change and add some meds because the meds they were giving her as a diuretic were causing her kidney's to get rid of good things like calcium but keep some bad thing it wasn't suppose to. It was very discouraging this morning when the doctor call for this update but the doctors were very positive because this thyroid thing was something that could be fixed with meds and when fixed will help some of her other systems (fyi-she will have to take a pill for her thyroid the rest of her life but as Andy says that's not a big deal).
So, please add Kelsey's hypo-thyroid to the list to pray for. She can't have open heart surgery until her thyroid and blood are fixed. Also, pray during this time she would start to thrive and not just surive. We want her to gain good weight and not just fluid but it's hard when she is limited in the amount of food/milk she can intake.
Thanks again for your prayers and for taking the time to read this update.
Thursday, September 24, 2009
Subscribe to:
Post Comments (Atom)





No comments:
Post a Comment