It's been wonderful and totally exhausting to have Kelsey home. My friend Sheila asked me how is it going being full-time nurse, full-time momma, and full-time wife and it's very, very, very hard!!!!!!! Kelsey's doing good at home and her belly is a tiny bit smaller but still big. BUT her breathing is getting heavier and her irritated nose is making it worst. So, yesterday we took her to her ped cardiologist very worried. A chest x-ray, EKG and echo cardio later, the doctor increased a couple of her meds to help with increased fluid on her lungs from her heart. Pray that works and her breathing gets better.
Today, we had a follow up appt. with the hematologist and her blood counts were low and her liver function is still slowly going up. We're going tomorrow to get a blood transfusion, which will take about 6 to 8 hours. Please pray that goes well for Kelsey and Momma. Also, her liver function test was very disappointing. We were hoping it would start improving or staying the same by now. If it doesn't in the next week, it's not looking good for her liver to get better. A very scary thought. Please, please, please pray it will get better!!!!!!!!!
Sorry this is short, but it's all I have time for. As happy as we are to have Kelsey home, she's still a very, very sick little baby and this worried momma is tired and very stressed. Under these conditions it's hard to enjoy our little bundle of joy like I want too. Rom. 8:28 says, "And we know that all things work together for good for those who love God, who are called according to his purpose." I want to trust God to work this out but at times it's hard to remember to give Kelsey to Him and not take her back and worry about her. When we are weak He is strong and right now His strength is all I have because mine is gone.
Thanks for your prayers!!!!
Patti
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Thank you for sharing! I know tomorrow will be a long day. Know that we are thinking of Baby Kelsey and praying for you and your family. We think about you all the time!
ReplyDeletePraying for strength for you today and every day. You are an amazing momma and your children are so lucky t have both you and Andy. Asking God for the expected liver breakthrough and for complete healing.
ReplyDeleteLove you guys!
Jen Bell Riley
I hope the transfusion went well. I hope it was a place of strength for you. I always was recharged by watching all those amazing families battle and battle and battle, and I wanted to have that determination. I never saw one Mama looking deflated or beaten, they were pillars of faith and strength, and I pray you find the same thing in your struggles with Kelsey.
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