Nov 10, 2009

Kelsey's been doing pretty good the last several days. She has her last chemo dose tonight with no real side effects, yet. The next couple of days will be the important ones, as she will be most susceptible to infections with her white blood count expected to drop. So, praise all has been good so far and continued prayer that this treatment will work and she won't get any infection the next couple of days. We are still very concerned about her liver healing and starting to work better, asap. If it doesn't they talk like she won't make it, which is very alarming and scary to think of.

They have gotten to a point where getting an IV and drawing blood for various test is getting very difficult because most of her veins aren't good any more. So, they are going to put a PICC line in tomorrow or Thursday. They've tried before unsuccessfully, but this time Radiology is going to be doing it. Pray it works this time and that she won't get an infection with the it, either.

Because her breathing is stabilizing and there is no immediate danger, they are talking about moving Kelsey out of ICU and to the GI floor. We have mixed feelings about this. Good that they think she doesn't need the ICU support but scary because she won't have someone checking on her as much. We both feel like we will need to be with her more so she's not alone, but that means more time at the hospital for both of us and less time with Keeton.

Her belly is getting bigger but it seems a little slower. They drained 500 cc (a bottle of water) Tuesday a week ago. And although she doesn't need it at the moment, they are thinking they want to drain her before her white blood counts gets low and she's susceptible to infection from it.

One new good thing is they have been increased her feedings so she's now at 20 cc per hour. They are trying hard to get her to grow better. She seems to be doing ok but, tonight, Andy said she was spitting up a little. They are going to be watching and make sure she's still tolerating that much fluid tonight. Pray she can continue with this feeding as this is how much she needs for her size.

Because of all of this, I've been a little discouraged lately. I want to be hopeful that Kelsey will be better, but the doctors keep reminding me this treatment may not work. I keep praying and reading God's word but my heart is still a little heavy. I know I'm just really tired so that's not helping either. I really appreciate everything people are doing for Andy and I. We've had meals for us since Kelsey was born 3 months ago and it's been amazing all the people helping in so many ways. God has truly blessed us with loving family and friends and I'm very grateful and can't imagine going through all of this with out His help and everyone else's. I'm just ready for Kelsey to be healed and home.

Thanks for the prayers!!!!

Patti

Nana came to visit Kelsey girl and enjoyed holding her only granddaughter.

Molly came to visit little miss Kelsey, too.

Sleepy little baby girl.