Sorry, I haven't posted anything in several days, ok a week. So, I'm going back and posting several days this past week. I'm going to do the writing part first and then add pics. So, check back posts to make sure you didn't miss anything.
Thanks for checking and hopefully now that I have a rountine down with Kelsey, I can find more time to blog.
Patti
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Patti,
ReplyDeleteTomas' lungs were a mess for 7 months until I took him to a pulmonologist on my own. She started him on a inhaled medicine called Qvar and he dried up in about 2 weeks. It was then Mike and I found out he has a partially collapsed left lung and chronic lung disease. I kept bringing up his very labored breathing to every other specialist he had, but they all said it was a Down's thing or related to some other condition going on at the time. As the TMD, cholitis, and cardiac issues resolved, the GI and pulmonologist have been my greatest allies in caring for him. I know the worries you have with Kelsey; listening to your baby work that hard to breath is heart wrenching. I pray you get some answers soon, and that her TMD and liver problems will resolve. Please email me any time: mandd3@hotmail.com