What a Week!!!

Since Kelsey was moved on Monday, we've seen and talked to so many doctors that it's been exhausting. But, at the same time, exciting that so many doctors are trying to figure out what is causing Kelsey's ascites. All this to says most of them agree that Kelsey doesn't have a problem with her liver itself, but that the liver is sick because of her Transient Myeloproliferative Disorder (TMD) she's had since birth. Although it looks like the TMD is getting better the damage done to the liver is getting worst. So, Kelsey's hematologist wants to give her a low-dose chemotherapy treatment lasting five-days to see if this will help calm down her liver issues. We won't know if it will work for at least a week or two and Kelsey won't be ready for heart surgery for three week to a month. Her cardiologist and heart surgeon don't think she would make it through heart surgery at this point with her liver not working well. Kelsey still needs her heart surgery as soon as possible but will have to wait. Right now her lung pressures are good, but they need to stay good while we are waiting to see if this treatment will work. That's the other problem, this chemotherapy treatment may or may not work. If it doesn't, more than likely, Kelsey's liver will continue to get worst with no other treatment available. A thought we are trying not to think about. We are still praying for complete healing for Kelsey's liver. We know God is in control and are putting our sweet baby girl in His Hands to love and heal.

Please pray that this chemo treatment will work and that there won't be many side effects for Kelsey.

Pray also that her heart will continue to get better or at least continure to be a little stable. Oh, this last echo of her heart showed that the PDA is opening again. She seems to be doing ok with that but this is very important since we have to wait on her heart surgery.

Pray also that Kelsey will continue of grow. She hasn't grown as much this last month because of the fluid restricktions from the ascites, it's hard to give her enough food to grow well...not to mention her hearts and lungs are working so hard that she's burning a lot of caleries just to breath.

I hope all this make sense so you can best pray for our preious baby girl. I have some cute pics from her 3 month birthday I'll try to post asap. I know God is good no matter what and we are trying to patiently wait on His timing for Kelsey to get better and come home.

Patti