Yesterday morning, the Kidney doctors came to check on Kelsey's kidneys because she had decreased urine production and her creatinine levels were going up. He told Andy he didn't think thing were looking good for Kelsey's kidneys and that he expected her creatinine levels to go up even more by the next morning. Which would mean her kidneys were now failing. Andy told me the doctors thought her kidneys weren't looking good but he didn't tell me how bad they thought they were or that after they left he was crying over Kelsey thinking this might not get better. Andy just told me to talk to the doctors when I got up there that afternoon.
On the way to the hospital, I was feeling a little down. I usually do a lot of praying and singing with the radio to try and lift my spirits driving back and forth from the hospital. When I turned on the radio the song playing was the song "Praise you in this storm" that has been playing on my blog. Of course that just started the tears and I just wanted to ask God when was this going to end. But by the time I got to the hospital I was convinced that the kidney doctor was just one of those neg/no hope doctors and I wasn't going to think the worst yet. I was trying to hold on or better yet God was trying to give me back the hope I have in Him. I wanted to talk to Kelsey's main doctor (which I love this week...they change every week but we've been there long enough to start repeating them ), but when I got there her main doctor had already left, so I talk to the fellow that has been following Kelsey all month (he's moving up to the 12 floor ICU next month :( so we will have a new NP following Kelsey). He said the kidney doctor was very discouraging but that they had ordered some more test to verify this diagnosis and thought it would be best to wait and see if things got worst. It was a very solemn conversation and when he was talking about the kidney stuff I didn't look at him and just kept my eyes on my little Kelsey girl. Almost as if I didn't look at him, then what he was saying wasn't really true. The only positive thing was that he and the nurse both thought Kelsey was peeing a little more today. They do labs at 4:00am and 4:00pm and all of this was before her 4:00pm labs.
So, around 5:30pm they got her lab results back and her creatinine levels were down. I thought this was good but wasn't sure. Andy showed up a little after that and the fellow came by again. This time the conversation was much more happier. He was very encouraged by this and said even if the level was back up in the morning like the kidney doctor had thought, it wouldn't be as bad. If the levels were going up and down that was a much better diagnosis for the kidneys. Andy and I left and went to dinner after that a little more encouraged than that morning day.
At dinner Andy told me he was a little mad at me earlier because I didn't get that up set when he told me about the kidneys this morning. I told him I did get up set and that I was crying going up to the hospital but that I also had decided I wasn't going to let this doctor get me down and I was tired of this type of gloom and doom doctor that seem to have no hope when they talk to you. Since, everything seemed like it wasn't as bad as it was this morning he was really glad I didn't get as upset as he did. We had a good dinner and it was nice spending some time together.
On the way home another favorite song came on the radio, "What faith Can Do". It's new so I can't find it for my playlist yet but it talks about how faith can see your through impossible situations. Of course the tears flowed again but this time tears of hope. My God is the God of m
This morning, Andy called real early to find out Kelsey's creatinine level again and they went down again!!!!! God answered our prayers yet again. Andy met the kidney doctors again at 8:30am and he (the main one) said he was very surprised but glad and thought there was nothing really wrong with her kidneys. So, he wasn't coming back to check on her unless things change a lot. Although, Kelsey's kidneys are good at the moment, please pray they don't get worst because being on diuretics for a long time can damage the kidneys and she's on a really strong one at the moment because of all the fluid.
Also, since the drains were put in Kelsey hasn't pooped and x-ray showed she had a lot of gas. They gave her something to help and she finally pooped around noon today. She hasn't done another one yet and she really needs to. Her belly is still huge but now they are saying most of it is air and so she needs to stool it out.
I know this is a long update and it's all about pee and poop but don't take peeing and pooping for granted. Yesterday was a real tested our faith and I'm not sure how we did. This roller coaster ride has had a lot of ups and downs lately. I know God loves us and won't give us more than we can handle, I just wish he didn't think we could handle so much. I know God loves Kelsey more than we do and He wants the best for her and us. Our nurse told us today Kelsey heart surgeon came by to check on Kelsey (he does every day) and today all he said was "she going home" and left. And that the hope we are holding on to tonight!!!! That one day soon our baby girl will be home with us again!!!
Pray specifically that 1st Kelsey's belly continues to get smaller and the fluid issues gets a lot better and 2nd that they could really start trying to wean her off the vent. Thanks for reading all this and sorry it's was so long.
Patti
Here's the lyrics to the song "What Faith Can Do" by Kutless and you can watch the video at http://www.youtube.com/watch?v=7elxC8LXfzE
Everybody falls sometimes
Gotta find the strength to rise
From the ashes and make a new beginning
Anyone can feel the ache
You think it’s more than you can take
But you are stronger, stronger than you know
Don’t you give up now
The sun will soon be shining
You gotta face the clouds
To find the silver lining
I’ve seen dreams that move the mountains
Hope that doesn’t ever end
Even when the sky is falling
And I’ve seen miracles just happen
Silent prayers get answered
Broken hearts become brand new
That’s what faith can do
It doesn’t matter what you’ve heard
Impossible is not a word
It’s just a reason for someone not to try
Everybody’s scared to death
When they decide to take that step
Out on the water
It’ll be alright
Life is so much more
Than what your eyes are seeing
You will find your way
If you keep believing
I’ve seen dreams that move the mountains
Hope that doesn’t ever end
Even when the sky is falling
And I’ve seen miracles just happen
Silent prayers get answered
Broken hearts become brand new
That’s what faith can do
Overcome the odds
When you don't have a chance
When the world says you can’t
It’ll tell you that you can!
Kelsey Girl YOU CAN!!!!!
Sunday, January 31, 2010
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I love that song What Faith Can Do. Now I'll see Kelsey's sweet face when I hear it. Love you guys and praying, praying!
ReplyDeleteI think that says it all... "What Faith Can Do" and "And I’ve seen miracles just happen
ReplyDeleteSilent prayers get answered"... We daily lift you guys up in prayer... We send our love your way...
Talking about pee and poop is as normal as parents get. We complain about too much and too little, and sometimes where we find it. Even then, we'll worry about the color or the consistency.
ReplyDeleteOur prayer is that God will bring your sweet family a lot closer to "normal" by allowing you to bring Kelsey home soon.
Be strong you two, and lean upon our Lord.
Patti,
ReplyDeleteYour openness is such a beautiful thing, and your faith is so inspiring! Good for you for not letting the doom and gloom doctor get your spirits down. Kelsey needs her mama's faith, so we'll all keep praying for all of you and for a homecoming very shortly!
Also, happy belated birthday!
-Lisa P.
Don't apologize for a long blog. It helps us to know exactly what prayers sweet little Kelsey needs for the day. We love ya'll!!!!! :) —Sheila
ReplyDeleteI was thinking the exact same thing Sheila was. Don't apologize for a long blog! I read every word. Still praying!! Love, Angie H.
ReplyDeletePatti thank you for the update. I really look forward to your posts and the strength that you and you family provide to all who read! My mom has been keeping keeping up too and she is encouraged by your faith. We continue to pray everyday for your sweet girl!
ReplyDelete