After a bad weekend last week, we were hoping this week would be better but it's just gone from bad to worst. Kelsey is draining about a liter a day now. She had some problems with her chest tube drain this week. Tuesday it was clogged, Thursday they put in a bigger one, Friday morning it came out and Friday night they put in yet another chest drain. She's starting to drop her heart rate at moments and they don't know why. Her vent sets are higher because of the problems with the chest tube and her face is puff again. Most of the doctor now think this is part of her down syndrome and Transient myeloproliferative disorder (TMD). From the TMD her body is producing an inflammatory marking in her blood. They have always told us she would either get better or worst. She's now getting worst. Her blood pressure is dropping and they are having to give her more and more fluid to get the pressure in her vessel high enough to work.
I'm thankful for my personal relationship with God and His presence that is with us now, at our time of need. I've been listen to several songs by Jeremy Camp. I didn't know much about him until just this week. The song "Walk by Faith" (http://www.youtube.com/watch?v=dEkh_KxKao0) was written on his honeymoon. Three months later his wife died of overian cancer, she was 21 and he was 23. His first song written after her death was "I still believe" (http://www.youtube.com/watch?v=Myxg69UpMOA). He's now married and has two daughters and is boldy singing about his Lord and Savior. His latest song "Speaking Louder Than Before" http://www.youtube.com/watch?v=JitOS26V5Q4 is his latest endeaver to reach others with the message of Christ. These songs say what's on my heart right now!!!
I'm not sure what's instore for Kelsey, momma, daddy and Keeton this weekend and week but I can only trust in my loving God to see us though. We are still praying for a mircle for our sweet baby girl.
Thanks for your prayers,
Patti
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Thanks for the update Patti. I've been checking for it and praying. I love Jeremy Camp and have that cd "Speaking Louder Than Before". I remember reading his story and love his "I still Believe" song. Standing With you in prayer.
ReplyDeleteDiane
Andy and Patti, We have been keeping your family in constant prayer. We know the heartache of spending months in the hospital - we've been there. We know the roller-coaster of emotions that you can experience. And we know the pain of hearing news you don't want to hear. I pray for a peace that passes understanding.
ReplyDeletePaul & Becky Daily
Love you guys, Patti. My thoughts and prayers continue to be with you, Andy, Kelsey, and Keeton.
ReplyDeleteWe continue to raise you up in our prayers. Our Darcy continues to pray many times daily - Please let us know if you need anything!
ReplyDeleteThe Lesserts
Continuing to think of Kelsey. I check in often and am sorry to read this update that things have gotten worse. I hope that she can surprise them all and start getting better soon.
ReplyDeleteAndy & Patti:
ReplyDeleteMary and I will continue to lift your family up in prayer. Please know that you are cared for and loved and so many are interceding on Kelsey's behalf...I pray that you continue to see God's goodness in this trial.
Connor Bales
I'm so sorry that things are so tough right now. I appreciate that you are trying to struggle well. We will be praying with you and reading the blog to keep updated.
ReplyDeleteMuch Love,
Laura Joseph
Patti,
ReplyDeleteOur family continues to pray for Kelsey and all of you. We are on our knees for your sweet baby girl!
Sally Allen